I get letters like this every single day. Not quite as bad as this one every day, but sometimes worse and even more heartbreaking. I often don’t know what to tell these people who are suffering so, and having a hard time getting the proper response from their medical team. So, this one I am offering to you, and maybe you have some suggestions for this family:
Hello , my name is Susan (name changed), We have been battling MRSA for over a year. 3 out of 5 of us has had a bought with this. My husband andmMy two daughters all have a terrible repercutions with this break out. We have gotten to the point where Doctors have not given us much hope. We even have Doctered at the University of Minnesota of which are the best of the best. Sadly they to me have not helped and given us other options.
My daughter who is 14 is the carrier. Has been treated with vancomyocin as the last alterantive. Now is vancomyocin resistant.
Another daughter who is 4 is not the carrier but has had the worst break outs at one time she has had over 150 boils on her little body all of which were mrsa. Now is vancomycin resistant. She is the one who has suffered greatly with other medical issues also.
My husband who is 34 has had boughts of mrsa of which he needed to be hospitolized for.
Myself and our son has not had any break outs. No one can explain why we dont have the break out. We have a allergist that would like to see us have some blood tests to find out why we dont get the break out.
I am writing you this because I feel no one wants to help us anymore. Can you give us some help.